{"id":50727,"date":"2026-05-31T13:09:40","date_gmt":"2026-05-31T13:09:40","guid":{"rendered":"https:\/\/radiojehona.mk\/?p=50727"},"modified":"2026-05-31T13:09:41","modified_gmt":"2026-05-31T13:09:41","slug":"rreth-100-mije-te-prekur-nga-semundjet-e-rralla","status":"publish","type":"post","link":"https:\/\/radiojehona.mk\/?p=50727","title":{"rendered":"Rreth 100 mij\u00eb t\u00eb prekur nga s\u00ebmundjet e rralla"},"content":{"rendered":"\n
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Procedurat e gjata dhe t\u00eb ngadalshme burokratike e b\u00ebjn\u00eb edhe m\u00eb t\u00eb v\u00ebshtir\u00eb jet\u00ebn e personave me s\u00ebmundje t\u00eb rralla n\u00eb Maqedoni.<\/p>\n\n\n\n

Personeli mjek\u00ebsor dhe shoqatat k\u00ebrkojn\u00eb q\u00eb shteti ti leht\u00ebsoj\u00eb procedurat, nga p\u00ebrcaktimi i diagnoz\u00ebs deri te marrja e terapis\u00eb, p\u00ebr \u00e7ka ndonj\u00ebher\u00eb presin edhe me vite.<\/p>\n\n\n\n

\u201eS\u00eb pari duhet q\u00eb ai ila\u00e7 t\u00eb regjistrohet, pacienti t\u00eb diagnostikohet, pastaj kjo t\u00eb konfirmohet para s\u00eb gjithash n\u00eb institucionin ku \u00ebsht\u00eb diagnostikuar, m\u00eb pas te komisioni p\u00ebr s\u00ebmundje t\u00eb rralla, pastaj te Fondi t\u00eb ndahen mjetet, e m\u00eb pas tender\u00ebt. Kjo \u00ebsht\u00eb nj\u00eb procedur\u00eb e gjat\u00eb administrative. Duhet t\u00eb b\u00ebhet di\u00e7ka q\u00eb kjo procedur\u00eb administrativisht t\u00eb shkurtohet. Keni situata kur p\u00ebr shkak t\u00eb nj\u00eb pacienti, ndonj\u00eb kompani nuk paraqitet n\u00eb tender, sepse nuk i leverdis. Shteti duhet ta zgjidh\u00eb at\u00eb problem, t\u00eb gjendet m\u00ebnyr\u00eb p\u00ebr zgjidhjen e problemeve t\u00eb tilla\u201d, deklaroi Velibor Tasiq, Mjek.<\/p>\n\n\n\n

Mjek\u00ebt thon\u00eb se pacient\u00ebve duhet t\u2019u mund\u00ebsohet terapi e rregullt dhe e plot\u00eb me ato barna q\u00eb jan\u00eb t\u00eb miratuara nga Agjencia Evropiane e Barnave.<\/p>\n\n\n\n

\u201eNuk mund t\u2019ia nd\u00ebrprisni terapin\u00eb nj\u00eb pacienti dhe ta d\u00ebmtoni seriozisht, nd\u00ebrsa n\u00eb at\u00eb rast shteti ka investuar shum\u00eb para, i ka shkaktuar d\u00ebm pacientit dhe praktikisht i ka hedhur ato\u201d, tha Zoran Gu\u00e7ev \u2013 mjek.<\/p>\n\n\n\n

N\u00eb vitin 2025 buxheti p\u00ebr s\u00ebmundjet e rralla ishte 1 miliard e 250 milion\u00eb denar\u00eb, nd\u00ebrsa p\u00ebr k\u00ebt\u00eb vit ai \u00ebsht\u00eb m\u00eb i vog\u00ebl p\u00ebr 170 milion\u00eb denar\u00eb. Nd\u00ebrkoh\u00eb \u00ebsht\u00eb vendosur nj\u00eb model i ri p\u00ebr furnizim trevje\u00e7ar me barna.<\/p>\n\n\n\n

\u201eMendoj se furnizimi trevje\u00e7ar me barna do ta largoj\u00eb at\u00eb pasiguri q\u00eb pacient\u00ebt, familjet dhe shoqatat me padurim e prisnin se si do t\u00eb kaloj\u00eb tenderi, a do t\u00eb ket\u00eb barna, a do t\u00eb ket\u00eb mungesa. Me k\u00ebt\u00eb m\u00ebnyr\u00eb t\u00eb financimit, ky model do t\u00eb ndihmoj\u00eb q\u00eb t\u00eb mos ket\u00eb pasiguri dhe t\u00eb kemi furnizim t\u00eb vazhduesh\u00ebm me barna dhe materiale p\u00ebr k\u00ebta pacient\u00eb\u201d, theksoi Zllate Stojanovski, kryetar i Komisionit p\u00ebr s\u00ebmundje t\u00eb rralla.<\/p>\n\n\n\n

N\u00eb Maqedoni vler\u00ebsohet se ka nga 90.000 deri n\u00eb 110.000 persona me s\u00ebmundje t\u00eb rralla, por n\u00eb regjistrin e s\u00ebmundjeve t\u00eb rralla jan\u00eb t\u00eb regjistruar 1093 pacient\u00eb, prej t\u00eb cil\u00ebve 240 jan\u00eb f\u00ebmij\u00eb t\u00eb mosh\u00ebs deri n\u00eb 14 vje\u00e7.\/Alsat.mk.<\/p>\n","protected":false},"excerpt":{"rendered":"

Procedurat e gjata dhe të ngadalshme burokratike e bëjnë edhe më të vështirë jetën e personave me sëmundje të rralla në Maqedoni. Personeli mjekësor dhe shoqatat kërkojnë që shteti ti lehtësojë procedurat, nga përcaktimi i diagnozës deri te marrja e terapisë, për çka ndonjëherë presin edhe me vite. „Së pari duhet që ai ilaç të […]<\/p>\n","protected":false},"author":2,"featured_media":50728,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-50727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vendi"],"_links":{"self":[{"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/posts\/50727","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=50727"}],"version-history":[{"count":1,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/posts\/50727\/revisions"}],"predecessor-version":[{"id":50729,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/posts\/50727\/revisions\/50729"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=\/wp\/v2\/media\/50728"}],"wp:attachment":[{"href":"https:\/\/radiojehona.mk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=50727"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=50727"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/radiojehona.mk\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=50727"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}